Sections
Title | Starting Page | Number of Pages |
---|
Table of Contents | 4 | 4 |
List of Tables | 7 | 1 |
List of Figures | 7 | 1 |
Introduction | 8 | 1 |
Biobanks The Basics | 9 | 4 |
Introduction | 9 | 1 |
Types of Biobanks | 9 | 1 |
DNA Banks | 9 | 1 |
Cell Culture Banks | 9 | 1 |
Pathologically Altered Vital Tissue Banks | 10 | 1 |
Benefits of Biobanks | 10 | 1 |
Biobanks - Brief History | 11 | 1 |
Framingham Heart Study | 11 | 1 |
Monitoring of Cardiovascular Diseases Project | 12 | 1 |
Characteristics of a Biobank | 12 | 1 |
Classification of Biobanks | 12 | 1 |
Population-Based Biobanks | 12 | 1 |
Disease-Based Biobanks | 12 | 1 |
Biobanks Overview | 13 | 10 |
Introduction | 13 | 1 |
National Biobanks | 13 | 1 |
Funding Structure in Biobanking | 13 | 1 |
Funding Issues | 14 | 1 |
Private Funding | 14 | 1 |
Public-Private Funding | 14 | 1 |
Public Funding | 15 | 1 |
Partnerships Structure in Biobanking | 16 | 1 |
Comparison of Partnerships | 17 | 1 |
Increasing Harmonization | 18 | 1 |
Biobanks Participating in Harmonization | 18 | 1 |
Expert Centers Trans-national Research | 19 | 1 |
Cost of Biobanks | 20 | 1 |
Sample Collection | 20 | 1 |
Biobank Set Up | 20 | 1 |
Maintenance of the Biobank | 20 | 1 |
Research Costs | 20 | 1 |
Outreach Activities | 20 | 1 |
Conclusion | 21 | 1 |
SWOT Analysis of Biobanking Sector | 21 | 1 |
Strengths | 21 | 1 |
Weaknesses | 22 | 1 |
Opportunities | 22 | 1 |
Threats | 22 | 1 |
Biobanks Population-based Biobanks | 23 | 22 |
Introduction | 23 | 1 |
Cohort study or Panel Study | 24 | 1 |
deCODE Genetics | 24 | 1 |
Background Information | 24 | 1 |
Organizational Structure | 25 | 1 |
Financial Support | 25 | 1 |
Collaborations | 26 | 1 |
Future Plan | 26 | 1 |
CARTaGENE | 26 | 1 |
Background Information | 26 | 1 |
Organizational Structure | 27 | 1 |
Financial Support | 27 | 1 |
Collaborations | 27 | 1 |
Future Plan | 28 | 1 |
UK DNA Banking Network | 28 | 1 |
Background Information | 28 | 1 |
Organizational Structure | 28 | 1 |
Financial Support | 29 | 1 |
Collaborations | 30 | 1 |
Future Plan | 31 | 1 |
European Network for Genetic and Genomic Epidemiology (ENGAGE) | 31 | 1 |
Background Information | 31 | 1 |
Organizational Structure | 32 | 1 |
Financial Support | 33 | 1 |
Collaborations | 33 | 1 |
Future Plan | 33 | 1 |
TRANSBIG Network | 34 | 1 |
Background Information | 34 | 1 |
Organizational Structure | 35 | 1 |
Financial Support | 35 | 1 |
Collaborations | 36 | 1 |
Future Plan | 36 | 1 |
Iceland Health Sector Database | 36 | 1 |
Background Information | 36 | 1 |
Organizational Structure | 36 | 1 |
Financial Support | 36 | 1 |
Collaborations | 36 | 1 |
Future Plan | 37 | 1 |
Tumor Bank of Castilla-Leon (BTCyL) | 37 | 1 |
Background Information | 37 | 1 |
Organizational Structure | 37 | 1 |
Financial Support | 38 | 1 |
Telethon Genetic Biobank Network | 38 | 1 |
Background Information | 38 | 1 |
Organizational Structure | 38 | 1 |
Financial Support | 39 | 1 |
Collaborations | 39 | 1 |
Future Plan | 40 | 1 |
EuroBiobank | 40 | 1 |
Background Information | 40 | 1 |
Organizational Structure | 41 | 1 |
Financial Support | 42 | 1 |
Collaborations | 42 | 1 |
Future Plan | 43 | 1 |
Latvian Biobank | 43 | 1 |
Background Information | 43 | 1 |
Organizational Structure | 43 | 1 |
Financial Support | 43 | 1 |
Collaborations | 43 | 1 |
Future Plan | 43 | 1 |
Canadian Partnership for Tomorrow Project | 43 | 1 |
Background Information | 43 | 1 |
Organizational Structure | 43 | 1 |
Financial Support | 43 | 1 |
Collaborations | 44 | 1 |
Future Plan | 44 | 1 |
Biobanks Disease-Based Biobanks | 45 | 17 |
Introduction | 45 | 1 |
Cancer Biobanks | 46 | 1 |
Victorian Cancer Biobank | 46 | 1 |
Background Information | 46 | 1 |
Financial Support | 46 | 1 |
Future Plan | 46 | 1 |
The Ontario Tumor Bank | 46 | 1 |
Background Information | 46 | 1 |
Financial Support | 47 | 1 |
Future Plan | 47 | 1 |
The Canadian Tumor Repository Network | 47 | 1 |
Background Information | 47 | 1 |
Financial Support | 47 | 1 |
Future Plan | 47 | 1 |
Tumor Tissue Repository | 47 | 1 |
Background Information | 47 | 1 |
Financial Support | 48 | 1 |
Future Plan | 48 | 1 |
Brain Biobanking | 48 | 1 |
Huddinge Brain Biobank | 48 | 1 |
Background Information | 48 | 1 |
Financial Support | 48 | 1 |
Future Plan | 48 | 1 |
MRC London Brain Bank for Neurodegenerative Diseases | 49 | 1 |
Background Information | 49 | 1 |
Financial Support | 49 | 1 |
Future Plan | 49 | 1 |
The MRC HIV Brain and Tissue Bank | 49 | 1 |
Background Information | 49 | 1 |
Financial Support | 49 | 1 |
Future Plan | 49 | 1 |
The MRC Sudden Death Brain and Tissue Bank | 50 | 1 |
Background Information | 50 | 1 |
Financial Support | 50 | 1 |
Future Plan | 50 | 1 |
CJD Brain and Tissue Bank | 50 | 1 |
Background Information | 50 | 1 |
Financial Support | 50 | 1 |
UK Multiple Sclerosis Tissue Bank | 50 | 1 |
Background Information | 50 | 1 |
Financial Support | 51 | 1 |
Future Plan | 51 | 1 |
South West Dementia Brain Bank | 51 | 1 |
Background Information | 51 | 1 |
Financial Support | 51 | 1 |
Future Plan | 51 | 1 |
Queen Square Brain Bank for Neurological Disorders | 51 | 1 |
Background Information | 51 | 1 |
Financial Support | 52 | 1 |
Future Plan | 52 | 1 |
Newcastle Brain Tissue Resource | 52 | 1 |
Background Information | 52 | 1 |
Financial Support | 52 | 1 |
Future Plan | 52 | 1 |
Twin Registries | 52 | 1 |
GenomEUTwin | 52 | 1 |
Background Information | 52 | 1 |
Financial Support | 52 | 1 |
Future Plan | 53 | 1 |
The Australian Twin Registry | 53 | 1 |
Background Information | 53 | 1 |
Financial Support | 53 | 1 |
Future Plan | 53 | 1 |
The Mid-Atlantic Twin Registry | 54 | 1 |
Background Information | 54 | 1 |
Financial Support | 54 | 1 |
Future Plan | 54 | 1 |
Stem Cell Biobanking | 55 | 1 |
The Singapore Stem Cell Consortium | 55 | 1 |
Background Information | 55 | 1 |
Financial Support | 55 | 1 |
Future Plan | 55 | 1 |
Coriell Stem Cell Biobank | 55 | 1 |
Background Information | 55 | 1 |
Financial Support | 55 | 1 |
Swiss Stem Cells Bank | 56 | 1 |
Background Information | 56 | 1 |
Financial Support | 56 | 1 |
Future Plan | 56 | 1 |
Children Biobanks | 56 | 1 |
The Norwegian Mother and Child Cohort Study (MoBa) | 57 | 1 |
Background Information | 57 | 1 |
Financial Support | 57 | 1 |
Future Plan | 57 | 1 |
Avon Longitudinal Study of Parents and Children (ALSPAC) | 57 | 1 |
Background Information | 57 | 1 |
Financial Support | 57 | 1 |
Future Plan | 57 | 1 |
Largest Biobanks and Biobanking Networks in the World | 58 | 1 |
The Public Population Project in Genomics (P3G) | 58 | 1 |
Background Information | 58 | 1 |
Financial Support | 58 | 1 |
Future Plan | 58 | 1 |
Estonian Genome Project (EGP) | 58 | 1 |
Background Information | 58 | 1 |
Financial Support | 59 | 1 |
Future Plan | 59 | 1 |
Singapore Tissue Network | 59 | 1 |
Background Information | 59 | 1 |
Financial Support | 59 | 1 |
Future Plan | 59 | 1 |
UK Biobank | 59 | 1 |
Background Information | 59 | 1 |
Financial Support | 60 | 1 |
Future Plan | 60 | 1 |
International Genomics Consortium (IGC) | 60 | 1 |
Background Information | 60 | 1 |
Financial Support | 61 | 1 |
Future Plan | 61 | 1 |
Biobanks Regulatory and Ethical Issues and Challenges | 62 | 3 |
Introduction | 62 | 1 |
Issues Related to Biobanking | 62 | 1 |
Informed Consent | 62 | 1 |
Confidentiality | 62 | 1 |
Returning Results from Biobank | 62 | 1 |
Secondary Use of Samples Collected Over Time | 63 | 1 |
Challenges Faced by Biobanks | 64 | 1 |
Conclusions | 64 | 1 |
Biobanks Appendix | 65 | 5 |
Market Definitions | 65 | 1 |
Abbreviations | 65 | 2 |
Sources | 67 | 1 |
Research Methodology | 68 | 2 |
Coverage | 68 | 1 |
Secondary Research | 68 | 1 |
Primary Research | 68 | 1 |
Expert Panel Validation | 69 | 1 |
Contact Us | 69 | 1 |
Disclaimer | 69 | 1 |